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RESOURCES
RESOURCES FOR HEALTHCARE PROFESSIONALS
American College of Chest Physicians
www.chestnet.org
American Lung Association
www.lungusa.org
American Thoracic Society (ATS)
www.thoracic.org
Clinical Studies Assessing Pirfenidone in IPF: Research of Efficacy and Safety Outcomes (CAPACITY)
www.capacitytrials.com
ClinicalTrials.gov
www.clinicaltrials.gov
Coalition for Pulmonary Fibrosis
www.coalitionforpf.org
National Organization for Rare Diseases
www.rarediseases.org
US National Library of Medicine
www.nlm.nih.gov
GENERAL
The Coalition for Pulmonary Fibrosis is a nonprofit organization founded to further education, patient support, and research efforts for pulmonary fibrosis (PF), specifically IPF. The website includes information for patients and a list of support groups.
www.coalitionforpf.org
PILOT™ is a national continuing medical education initiative for physicians involved in the diagnosis and management of patients with IPF.
www.pilotforipf.org
Medline Plus is a service of the US National Library of Medicine and the National Institutes of Health that provides detailed content on pulmonary fibrosis as well as related links.
www.nlm.nih.gov
The Canadian Lung Association is dedicated to doing everything possible to improve respiratory health, offering information and local resources for people with lung diseases.
www.lung.ca
OXYGEN
Breathin' Easy is a guide for travelers with using portable oxygen, including tips and articles on traveling by air, sea, rail, and road.
www.breathineasy.com
The National Home Oxygen Patients Association was established to give supplementary oxygen users the information necessary to lead productive lives.
www.homeoxygen.org
LUNG TRANSPLANTATION
The Brigham and Women's Hospital's Lung Transplantation Program web site offers valuable information on lung transplantation.
www.brighamandwomens.org
Newlungs.com offers an extensive list of links to resources about lung transplantation on the Internet.
www.newlungs.com
References:
- Raghu G et al. Incidence and prevalence of idiopathic pulmonary fibrosis. Am J Respir Crit Care Med. 2006; 174: 810-16.
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